1. Initial investigation and referral
Your general practioner (GP) will assess your symptoms (for example, upper abdominal pain, difficulty swallowing), conduct a physical examination and order any blood tests if needed.
Your GP should also discuss your needs (including physical, psychological, social and information) and recommend sources of reliable information and support.
If cancer is suspected, you will be referred to an endoscopist for a diagnostic endoscopy within two weeks.
Endoscopy: A flexible tube with a camera on it (called an 'endoscope') is inserted into the nose or throat, and the images appear on a screen.
It can be helpful to bring a family member or friend with you to your appointments.
2. Diagnosis and staging
The endoscopist should discuss your test results and, if cancer is present, will refer you to a specialist in the management of oesophagogastric cancer (if not specialising in this area themselves) for further testing to find out whether the cancer has spread and, if it has, the stage of development.
You may have one or more of these tests:
Computed tomography (CT) scan
Computer technology and x-rays are used to create detailed images of the body.
Endoscopic ultrasound (EUS)
An endoscope with a probe on the end is inserted into your oesophagus and stomach and uses high-frequency sound waves to create an image.
Positron emission tomography (PET) scan
This produces a three-dimensional colour image that may show where cancers are located. A small amount of radioactive material is injected and the whole body is scanned.
Laparoscopy (for stomach cancer)
Under an anaesthetic, a thin tube (a laparoscope) is inserted into your body through small cuts on your abdomen to look for cancer that is too small to be seen on PET or CT scans.
It can be helpful to contact cancer peer support groups and support groups for carers.
Here is a list of questions to ask your doctor.
To ensure you receive the best care, your doctor will arrange for a team of health professionals to plan your treatment and recommend treatment based on your preferences and needs.
The team will be made up of health professionals who have experience managing conditions such as oesophagogastric cancer. Your doctor will tell you when the team will be discussing your case.
Your doctor should discuss the different treatment options with you including the likely outcomes, expected timeframes, possible side effects and the risks and benefits. Your doctor may also suggest you consider taking part in a clinical trial. You might want to ask for more time before deciding on your treatment, or ask for a second opinion.
Let your team know about any complementary therapies you are using or thinking about trying. Some therapies may not be appropriate, depending on your medical treatment.
Oesophagogastric cancer is often not found until it is advanced because symptoms can go unnoticed, and it can sometimes be difficult to completely remove all the cancerous cells. In some cases more than one type of treatment will be used to get the best outcome.
Treatment options for oesophagogastric cancer:
It is important that this surgery is performed by a surgeon who is experienced in performing oesophagogastric cancer surgery and who regularly performs these operations.
Several types of treatment can be done by passing an endoscope down the throat. Some of these treatments may be used to try to cure very early stage cancers or even to prevent them from developing.
Chemotherapy or drug therapy
Chemotherapy or drug therapy may be given to treat cancers that have spread to other organs.
Radiation therapy (also called radiotherapy) may benefit patients with some types of oesophagogastric cancer including cancer that has spread to different parts of the body. It may be given to you in combination with surgery or chemotherapy.
The doctor inserts a tube of flexible mesh (a stent) into your oesophagus. The stent expands the oesophagus to allow fluid and food to pass into the stomach more easily.
Your doctor should discuss your needs with you during and after treatment (including physical, psychological, social and information) and may refer you to another service or health professional for different aspects of your care. It is particularly important that you have access to a dietitian and a speech pathologist during your treatment.
It can be helpful to contact cancer peer support groups and support groups for carers.
Palliative treatment could be used at different stages to relieve various symptoms and help to improve quality of life. Help should be sought for any troubling symptoms (for example pain, difficulty swallowing).
For more information about treatment and treatment side effects ask your doctor or visit our treatment section.
4. After treatment
After your primary treatment is completed, your doctor should provide you with a treatment summary that details the care you received, including:
- diagnostic tests performed and their results
- types of treatment used and when they were performed
- treatment plans from other health professionals
- supportive care services provided to you.
Your doctor will decide whether your ongoing care will be managed by your GP or a palliative care physician.
You and your GP should receive a follow-up care plan that tells you about:
- the type of follow-up that is best for you
- care plans for managing any side effects of treatment, should they occur
- how to get specialist medical help quickly if you think the cancer has returned or worsened.
Your doctor should:
discuss your needs with you and refer you to appropriate health professionals and/or community organisations, if support is required
provide information on the signs and symptoms to look out for that might mean a return of the cancer
provide information on prevention and healthy living
5. Living with cancer
Some people experience side effects (for example, tiredness) that continue beyond the end of treatment. Sometimes side effects don’t begin until months after treatment has finished. For more information about side effects ask your doctor.
Advance care plan:
Your doctor may discuss with you the option of developing an advance care plan. An advance care plan is a formal way of setting out your wishes for future medical care. For more information about advance care planning ask your doctor or visit advancecareplanning.org.au.
This type of treatment could be used at different stages to help you with pain relief, to reduce your symptoms or help improve your quality of life. For more information about palliative care ask your doctor or visit palliativecare.org.au.
6. Questions of cost
There can be cost implications at each stage of the cancer care pathway, including costs of treatment, accommodation and travel. There can be substantial out-of-pocket costs if you are having treatment in a private health service, even if you have private health insurance.
You can discuss these costs with your doctor and/or private health insurer for each type of treatment you may have. If you are experiencing financial difficulties due to your cancer treatment you can contact the social worker at your local hospital.
For more information visit costs of treatment.
For more information about accommodation and travel costs visit our support section.
7. Further support
Oesophagogastric cancer support
You can speak to specially trained staff at Cancer Council on 13 11 20. They can answer your questions about the effects of cancer, explain what will happen during treatment and link you to support groups and other community resources.
If you need an interpreter, call TIS (the Translating and Interpreting Service) on 13 14 50.
For support and advice for carers, call the Carers Association on 1800 242 636.
More support options
Australian Cancer Survivorship Centre
Has general and tumour-specific information, primarily focused on the post-treatment survivorship phase
• Telephone: (03) 9656 5207
• Website: www.petermac.org/cancersurvivorship
beyondblue: the national depression initiative
Information on depression, anxiety and related disorders, available treatment and support services
• Telephone: 1300 22 4636
• Website: www.beyondblue.org.au
NEMICS A common path: Oesophagogastric cancer
Videos offering support and advice from people who have been through cancer.
• Visit: www.youtube.com/c/ACommonPathCancersupportandadvice
Information on cancer prevention, screening, diagnosis, treatment and supportive care for Australians affected by cancer, and their families and carers
• Telephone: 1800 624 973
• Website: www.canceraustralia.gov.au
Care Search: Palliative Care Knowledge network
Information for patients and carers on living with illness, practical advice on how to care, and finding services
• Telephone: (08) 7221 8233
• Website: www.caresearch.com.au
National Health Services Directory
A directory providing information on local hospital and community services
• Website: www.nhsd.com.au
Clinical versions of the optimal care pathways have been developed for clinicians and general practitioners here.