Trusted websites and information

Cancer research / treatment

• Australian & New Zealand Breast Cancer Trials Group - A clinical trials program  focused on the treatment and prevention of breast cancer. The program involves multicentre clinical trials and collaboration with more than 80 institutions and 300 researchers across Australia and New Zealand.
• Australian & New Zealand Urogenital and Prostate (ANZUP) Cancer Trials Group - A cooperative clinical trials group, established to bring together all the professional disciplines and groups involved in researching and treating urogenital cancers (testicular, bladder, kidney, prostate).
• Center for Analysis of Rare Tumours (CART-WHEEL) - An online registry for patients diagnosed with rare types of tumours to submit case information that can assist researchers.
• Clinical Trials Centre (NHMRC) - Information about clinical trials and other research.
• Consumer Learning - A site developed to enhance the contribution of people affected by cancer to clinical trials research. The website contains short online learning modules and video presentations to guide consumers who are seeking to participate in clinical trials.
• International Agency for Research on Cancer - Part of the World Health Organisation (WHO), focusing on research into the causes of cancer, the mechanisms of carcinogenesis, and developing scientific strategies for cancer control. (International)
• PubMed - A search service that provides access to over 10 million citations in MEDLINE, PreMEDLINE, and other related databases, with links to participating online journals. (USA)
• Cancer subset of PubMed - Search papers specific to cancer in the US National Library of Medicine. (USA)
• Melanoma and Skin Cancer Trials - A collaborative trials group specialising in investigator-initiated melanoma and skin cancer research.
• Quackwatch - A website of a US non-profit corporation providing information about quackery and unproven remedies, including an "alternative cancer treatment registry". (USA)
• Respecting Patient Choices - Website created by Melbourne-based Austin Health to provide information on advanced care planning.
• Trans Tasman Radiation Oncology Group - Facilitates research into cancers that can be treated with radiotherapy, either alone or in combination with other treatments such as surgery or chemotherapy.
• Victorian Cancer Trials Link - A searchable database of all cancer clinical trials being conducted in Victoria.

Particular cancer types and related issues

Breast cancer

• BreastScreen Australia - The national mammographic screening program. It provides free screening mammograms for women aged 50-69, with the aim of reducing deaths from breast cancer in this target group.
• Fertility-related choices: A decision aid for younger women with early breast cancer - A booklet describing the different fertility options available to younger women with early breast cancer. It has been designed specifically to help patients consider the pros and cons and work out which fertility treatment, if any, is best suited to their situation.

Bowel cancer

• Bowel Cancer Australia - Focuses on empowering and supporting people affected by bowel cancer through advocacy and awareness.

Cervical cancer

• Federal Government cervical screening program - promotes early detection.
• PapScreen Victoria - Provides comprehensive information  on Pap testing and cervical cancer screening.

Children/teenagers

• Australian Teenage Cancer Patients' Society (Canteen) - Offers support for teens with cancer.
• CanTeen Connect for Parents - Designed to connect parents impacted by cancer and provide tailored support and resources.
• Camp Quality | Helping Kids 0-15 Facing Cancer - Brings positivity, fun, and laughter back into the lives of kids facing cancer - there for children and their families, from the heartbreaking news of a cancer diagnosis, through every step of the experience.
• Children and teenagers at the end of life: talking about dying - When children are dying, they need information to understand what’s happening. Talking is important.
• When a sibling is dying: supporting children and teenagers – Information on how and why it is important to tell children that their sibling is dying. It helps them feel safe and adapt to changes in family life.
• When your child is dying: looking after yourself - Information for parents on looking after themselves and their relationships, so they are better able to care for their child.
• After your child’s death: looking after yourself - Support for parents who have lost a child and information on how to look after themselves during this devastating time.

HIV and cancer

• Positive Life NSW - Provides a fact sheet for people with both cancer and HIV.

Inherited cancer

• Inherited Cancer Australia - Information to provide a better understanding of inherited cancer risk.

Kidney cancer

• Kidney Health Australia - Information on kidney cancer, symptoms, diagnosis and treatments.

Lung cancer

• The Australian Lung Foundation - Promotes lung health; elevates public awareness of the symptoms of lung disease; promotes early diagnosis; provides support for all those affected by lung disease; advocates for further research and screening into lung disease; and facilitates medical and scientific research into lung disease.

Lymphoedema

• The Lymphoedema Association of Australia - Information about lymphoedema, treatment, support groups and resources.

Lymphoma

• Lymphoma Australia – A not for profit dedicated to information and support for people affected by lymphoma.

Mesothelioma and asbestos-related lung cancers

• Asbestos Diseases Society of Australia - counselling and support services, advocacy, and fundraising for medical research and support services.

Myeloma

• Myeloma Foundation Australia - The only Australian myeloma-specific not-for-profit organisation, supporting, educating, informing, empowering and bringing hope to people who are living with myeloma, and their loved ones.

Ovarian cancer

• Ovarian Cancer Australia - A national organisation dedicated to supporting women affected by ovarian cancer through advocacy, education, research funding, and providing resources and support services.

Pancreatic Cancer

• Pancreatic Cancer Alliance - A collaborative voice raising awareness of pancreatic cancer in Australia with a long-term view of increasing donor funds to support research.

Palliative care

• Palliative Care Australia - Information about palliative care and a national directory of services.
• CarerHelp – Provides information and advice to the thousands of Australians who find themselves having to care for a partner, friend or relative affected by cancer.
• Children and teenagers at the end of life: support – Information on family routines, social connections, goals, and end-of-life wishes, which can be good for children at the end of life.

Prostate Cancer

• Prostate Cancer Foundation of Australia - Information about prostate cancer and a list of support groups, plus links to other prostate cancer sites.
• Lions Australian Prostate Cancer Website - A comprehensive guide to assist men affected by prostate cancer and their families.

Rare cancers

• Rare Cancers Australia - Information and news on rare cancer types, personal stories and links to other organisations supporting people with rare cancers.

Skin cancer

• Royal Australasian College of Dermatologists - Information about melanoma, UV radiation and prevention, diagnosis and treatment of skin cancer.
• SunSmart - Information about the Victorian SunSmart campaignabout skin cancer, research, resources for schools, games and information for kids.

Tobacco control/smoking

• National Tobacco Campaign - Information about the Australian government’s anti-smoking initiatives and quitting resources.
• QUIT - Provides "background briefs" with information about smoking and health issues, and stopping smoking, and a "Tobacco Action Pack" for students.
• Tobacco Information and Prevention Source (TIPS) - A resource from the US Centres for Disease Control with general information, current news and events, research, data and reports categorised by topic, new tobacco-related citations and educational materials.
• WHO tobacco free initiative - Information about World Health Organisation tobacco control initiatives, major international reports, and WHO publications, reports and fact sheets. (International)

Patient support and advocacy

• Breast Cancer Network Australia - Empowers, informs, represents and links together Australians personally affected by breast cancer.
• Look Good Feel Better - A free community service program dedicated to helping women undergoing treatment for cancer.
• Life, Hope and Reality - Provides information for people with advanced cancer and their families, caregivers and friends.

Tasmanian Cancer Websites

Cancer Council Tasmania has compiled a list of Tasmanian cancer related websites that are judged to contain quality information on cancer.

• Tasmanian Health Care Services Directory
• Cervical screening | Tasmanian Department of Health
• BreastScreen Tasmania | Tasmanian Department of Health
• Tasmanian Cancer Registry